Monday, August 31, 2009

I need to get tested.

For the past two weeks, I have been looking at my hands, holding my hands, typing with my hands. I have come to the same conclusion every day: my hands are not my own. This is different from the every day thought - I can't talk today - I wonder if I have HD? I shouldn't have tripped over that little bump in the sidewalk - do I have HD?

It's strange. I still feel life pulsing through them, and I can still completely control them - but there seems to be some unnamable element that makes them not mine. It's a completely terrifying feeling. If it's not HD, I need to go see the doctor about what it is.

If it is HD, I never thought it would come this early. This changes every thing. How can I think about having a baby if I'm already showing symptoms at 26? It would be wrong to do that to DH, to make him care for me and a young child, and it would be wrong to do that to a child - I had no problem having children if I tested positive because I could at least give them 10 years of love and life - and if I can't do that? What am I here for, then? As cliche and anti-feminist as it is, my one desire and goal in life has been to become a stay at home mom, taking care of my family.

I know these are a lot of speculations. And it's a huge leap. But there is something in my hands that is scaring me to pieces right now.

It is so hard to remember sometimes that my whole life is in His hands.

13 comments:

Angela_F said...

There have been times when I have thought "it's starting" but when you're looking for answers, sometimes you look too hard and sometimes you overanalyse. And if you start watching for it, even subconsciously, you notice it in yourself even more. It becomes a cycle and you just can't stop.

Anyone can have a nervous twitch or a tremour or be clumsy or forget things. I love it when my husband does something like that as it reminds me that I am normal and am going to be for a good bit yet.

Trust in yourself and try not to watch over yourself. Completely easier said than done but otherwise you'll drive yourself mad whether it's started or not.

Falling Star said...

Hey there. I just wanted to let you know that I read your blog. i'm at risk, too. I'd like to know how you're holding up. I hope all is well.

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Angela said...

I am also at risk, I am 20 years old and feel too that I am pre-symptomatic... My brother, 22, diagnosed in december with HD, and my father in 2001 when he was 35 years old...

I feel like every spasm, twitch and knee-jerk reaction is also HD. I just did my life insurance so that will be taken care of incase I am HD positive.

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Anonymous said...

I'm 26 and this March I tested +ve (found August 09 I was at risk). I know how down I get about it.

It doesn't help that none of my friends understand that Huntington's just doesn't suddenly turn itself on. The CAG repeats are already causing the protein to "misfold" and is gradually effecting me, even if they don't notice it.


What scares me is how much of the "milder" symptoms I have and that have got worse since my teens. It is important to try and not interpret everyday things as symptoms but it also equally important to accept what may happen to you.

Anonymous said...

man its tough - but life is weird and the worst of times can also contain some of the best of times - there are some good things to be found, though it may not always seem like it